World Thalassaemia Day Observed on 8 May 2025.

World Thalassaemia Day, also known as International Thalassaemia Day (ITD), is observed annually on May 8 across the globe. The day aims to raise awareness about thalassaemia, an inherited blood disorder that results in lower levels of haemoglobin, affecting the oxygen-carrying capacity of red blood cells. It also celebrates the global thalassaemia community and advocates for improved care and rights for those living with the condition.

      - The theme of World Thalassaemia Day 2025 is “Together for Thalassaemia: Uniting Communities, Prioritizing Patients”. It emphasizes a shift toward a more patient-centered and inclusive approach to healthcare. The slogans for ITD 2025 are "WeAre1" and "PatientsFirst", which underline unity and the importance of placing patients at the core of medical efforts and policy-making.

      - The observance is led by the Thalassaemia International Federation (TIF), a key organization working toward the prevention and management of thalassaemia. The day also serves as a platform to acknowledge the challenges, healthcare needs, and social issues faced by individuals affected by the disorder.

      - World Thalassaemia Day was established in 1994 by Panos Englezos, the president and founder of TIF. It was created in memory of his son, George Englezos, who passed away due to complications from thalassaemia. The initiative seeks to unite people globally to fight this condition through education, prevention, and treatment awareness.

Main Point :-   (i) Thalassaemia is a genetic blood disorder that impairs haemoglobin production. It is passed from parents to children through mutated haemoglobin genes. Symptoms commonly include chronic anemia, fatigue, pale skin, and breathlessness. Over time, if untreated, it can result in serious organ damage.

      (ii) There are primarily two types: Alpha thalassaemia, which results from mutations affecting alpha-globin production, and Beta thalassaemia, caused by beta-globin gene mutations. Beta thalassaemia is the more severe form and often requires regular blood transfusions and ongoing medical care.

(iii) Individuals with thalassaemia may suffer from complications such as heart, liver, lung, and endocrine gland damage, largely due to iron overload and anemia. In addition to physical health issues, patients may also experience mental health challenges and societal stigma, making access to holistic care even more crucial.
About Thalassaemia International Federation (TIF)